Information on the following studies can be found at www.clinicaltrials.gov. Search by title or click on links provided.
Links to Studies:
Phase IIa Trial of ALXN1007 for the Treatment of Non-criteria Manifestations of Antiphospholipid Syndrome
Pharmacokinetic, Efficacy, and Safety Study of Octafibrin Compared to Haemocomplettan/Riastap
Visit the site at www.rarecoagulationdisorders.org A dynamic, open-access website on rare coagulation disorders.
Visit the site at www.partnersprn.org A program initiated by the Indiana Hemophilia & Thrombosis Center, NHF, and Hemophilia of Michigan with complimentary online and on site education sessions developed by and for hemostasis and thrombosis professionals. Online sessions are open to anyone; on site sessions are open only to HTC professionals who are nominated. Potential audience: physicians, fellows/trainees/residents, nurses, other health care professionals interested in or working in hemostasis and/or thrombosis.
Visit the site at www.omedlive.com Features complimentary live and archived online continuing medical education events in many specialties including hemostasis. "The Changing Landscape of Hemophilia Management" was presented in 2013. Another hemostasis live event is planned for later in 2014.
Visit the site's page on Top Resources on Hematology & Blood Health: www.mastersinnursing.com/hematology-blood-health/ Features resources helpful to nurses and other health care professionals interested in learning more about blood disorders.
View a documentary highlighting the impetus and benefits of comprehensive hemophilia care in the U.S. The HTC clinician pioneers from the Western, Mountain and Pacific Northwest U.S. who initiated the then radical concept of team based care in the 1970's are featured. These pioneers tell an important historic story vital to today's health care reform efforts which seek to integrate care through the patient centered medical home model. The documentary also features an HTC patient. Three minute trailer: vimeo.com/37995804 34 minute documentary: youtu.be/H01d0cfzuFA