National Hemophilia Foundation

Programs and Partnerships Specialist II

Job Type


About The National Hemophilia Foundation (NHF)

The National Hemophilia Foundation (NHF) is dedicated to finding cures for inheritable blood disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive. Learn more at Hemophilia.org!

About the Role

NHF is now looking for a Programs and Partnerships Specialist II to join our team. Under the general direction from the manager the Programs and Partnerships Specialist II is responsible for overseeing and coordinating all aspects of programs, projects, and partnerships. Lead, coordinate, and collaborate with team members and external partners in the execution of initiatives. Plan, design, develop, initiate, evaluate, and manage all aspects of Research Department projects (such as Virtual Advisory Panel (VAPs)) and other initiatives aimed at including people affected by inheritable blood disorder in all aspects and phases of research in coordination and collaboration with other staff. Specific responsibilities include managing partnerships, leading current efforts, developing new programs, and creating guidelines and documents to support them. Shared responsibility for all aspects of research development and oversight including QI projects, Community Voices in Research (CVR), VAPs, all areas of recruitment and engagement, and new research initiatives.

What You Bring:

To qualify for this unique opportunity, our ideal candidate should have the following experience and education:

  • Bachelor's degree in life sciences, public health, or health-related field with data science/management required. Master’s preferred.
  • If this is an internal promotion: experience in the role for six months to twelve months demonstrating proficiency while meeting the qualifications for the higher level. If external: demonstrating equal skills and project/program/partnership results 
  • Minimum of 4+ years’ experience in research (inheritable blood disorders preferred), community engagement and communications or relevant field
  • Experience  in project/program management and leading strategic initiatives required
  • Demonstrated expertise in facilitating discussions required
  • Ability  to work on evenings and or/weekends based on program participants availability 
  • Polished  interpersonal and communication skills to interact and build relationships with NHF management and community members and other external stakeholders in individual and group settings
  • Highly proficient with creating reports using PowerPoint presentations and written reports.
  • Demonstrated ability to manage multiple projects and high-level, high exposure initiatives simultaneously working under tight deadlines and allocating resources required.
  • Demonstrated analytical, critical thinking, presentation, and negotiation skills a plus.
  • Completion of the Collaborative Institutional Training Initiative’s (CITI) and Good  Clinical Practices (GCP) web-based training program concerning the protection of human subjects in research required. If not certified at the time of employment, you must complete within the first 6 months of employment.
  • Proficient in Zoom, Microsoft Office Software, Excel, and must be readily adaptable to learning new software programs.
  • Bi-lingual a plus!


 As a Programs and Partnerships Specialist II, how results are achieved is paramount for your success and ultimately results in our success as an organization. In this role, your foundational knowledge, skills, abilities, and personal attributes are anchored in the following:

  • Critical/analytical thinking: You are able to obtain, analyze, synthesize, and evaluate information effectively. You practice objective rather than subjective modes of reasoning and action. Maintains perspective when assessing qualitative and quantitative information. You appropriately challenges and questions common beliefs. 
  • Adaptability: You are able to effectively adjust to changes in work processes and environment and illustrate behavioral change that exhibit emotional intelligence in various settings/situations.
  • Initiative: You understand the value of self-motivation and initiative; ability and willingness to seek out work and the drive to accomplish goals. You voluntarily takes the first steps to identify and address existing and potential obstacles, issues, and opportunities.
  • Project Management: You possess the discipline of planning, organizing, and managing resources to bring about the successful completion of a specific project. You are also able to plan, organize, monitor, and control projects, ensuring efficient utilization of technical and administrative resources, to achieve project objectives.

Compensation: In addition to the above benefits, we are committed to fair and equitable pay practices and base compensation on experience, education, revenue size and location-based cost of living calculations. For this position, NHF has set a starting base salary range $ 58,300-$70,500; open to negotiation and adjustment subject to geographic region, the candidate’s level of experience, skills, education and training. 

Where You Will Work: This is a remote role and the candidate can be based anywhere in the U.S; the ideal candidate will have comfort working remotely with a team located throughout the U.S. This position requires travel*, to Conferences, events, and meetings as requested by the Senior Manager of Programs & Partnerships.*Our policy requires all staff to be fully vaccinated against COVID-19 for employees required to travel for their role. Therefore, to be considered, you must be able to meet this requirement within 30 days of employment unless you are requesting a medical or religious exemption.

What We Offer: At NHF our mission is to serve those affected by all inheritable bleeding disorders. We are committed to our employees as well as those we serve. To do so, NHF seeks and values those qualities, both visible and invisible, that makes individuals unique. We strive to be a safe place where regardless of age, color, disability, gender, gender identity, gender expression, family status, national origin, race, ethnicity, or sexual orientation; you are heard, empowered and valued because we truly believe that every person brings a unique perspective and experience to advance our mission. In order to attract and retain a high performance team, we offer a dynamic and rewarding work environment. In addition to a competitive salary, NHF provides a comprehensive health and wellness program to eligible employees, family members and domestic partners. Our health and wellness programs include medical, dental, vision, prescription drug, preventative care, mental health services and an employee assistance / work-life balance program. We also offer:

• Full time employees: Three weeks (+) of vacation, four personal days, 12 sick days, 11 paid holidays, 1 Floating Holiday

• We also offer paid time off to Part-Time Employees 

• Paid Short-Term Disability insurance & Life Insurance 

• Pre-tax savings plan (including Flexible Spending Accounts and Commuter Transit Account)

• a 403(b) retirement plan.

Salary Description

$ 58,300-$70,500


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